A Not So Merry Christmas For Mini Mayhem

MM has had drainage and a cough for 2 weeks today. Being immunocompromised, it takes her a bit more time to get over things. She’s been fever free for a while and even woke up Friday morning sounding the best she had been. (I have been doing ALL the things I can do and giving her the only meds she can have for a cold (Flonase and Tussin DM) because of Karla.) I ran errands all day Friday and when I got home, our nurse, Debbie, said MM had played and had a great day.

MM was in the recliner playing, hootin and hollerin and laughing. Literally, mid laugh she stops, and her right arm began jerking. She tried to continue her laugh but couldn’t and went into a full seizure that lasted 54 minutes and required both doses of her rescue med. Usually after getting two doses and from the seizure wearing her out also, she will be very sleepy and almost always takes a nap. This time, she was 100 mph and back to having her own personal party of one. Saturday was a good day, and she went to bed about 10:00 pm last night.

She woke up at 3 am and was awake for an hour, just chillin. Today she kept sleeping and sleeping and I would talk to her and try to wake her up and she would arouse, yawn, and stretch but go right back to sleep. She slept until 5:15 tonight!!! She’s had a cough all day today as well and tonight, she coughed, choked and got sick twice with it being mostly drainage. Thankfully she didn’t lose much formula, so I haven’t had to supplement with additional fluids. She did wake up really sweaty and her room is not hot. I checked her temp several times today while she was sleeping and it was normal but having woke up sweaty, I wonder if she was sweating out a fever. She’s been a bit fussy so I know she doesn’t feel good. 

So we will be missing Christmas with the family this year and sticking around at home tomorrow. It kinda stinks but MM doesn’t like being around a lot of noise and I just don’t want her to be miserable….or everyone else too because she’s upset. We just might not get out of pajamas tomorrow, lay on the couch and watch The Grinch all day….or whatever MM wants to do. Anyhoo, MERRY CHRISTMAS from mine to yours.