Tales From an Exhausted Medical Mama

Being a mother of a disabled child is like juggling flaming torches while walking on a tightrope 50 feet in the air. I embarked on an unpredictable and challenging journey that requires unwavering strength, flexibility, and unconditional love. This is an experience that will push you to your limits and it is all too common to leave you feeling unequivocally exhausted, anxious, burned out, disconnected and alienated from other humans. The constant worry, emotional strain, and physical demands can take a toll on even the strongest folks. There are never-ending appointments where you are navigating a complex healthcare system and advocating tirelessly for your child’s needs and rights. There are sleepless nights and perpetual worry for the well-being of your child. The effects of stress on caregivers are nothing short of sacrificial, with countless other daily demands and impositions on top of it all. It involves forfeiting personal time, your own needs, career opportunities, and even rel...