12 Pages and Growing of Concerns/Complaints
8/8 We were back in patient with the same scenario as July, difficulty breathing and desatting to 66%.
We get to a room (1223) around 4am and finish up with everything and settle down just before 6am.
Nothing like getting to lie down just before sunrise only to learn the window by your head has no blind to lower. LB is getting jankier with each stay. I asked about a replacement on from 8/8 to 8/11. I thought maybe I’ll block the light by putting the half of the back of the couch that is completely removable, because it’s torn up, in the window. I stopped asking about a replacement because my husband came up and brought me an eye mask. Child Life did make a call to request a new shade on 8/12 and spoke with “the boss”. Someone came that day but the message to him was to hang the blind back up because it had fallen. No one even mentioned that it had fallen……only that it was MISSING, GONE, NO LONGER THERE. He said he would be back the next day to hopefully put another up or would make sure if one wasn’t available that one was ordered. No one has followed up so I am unsure if one had to be ordered or it was forgotten about all together. Communication breakdown! So I have taken half of the couch back and it is stuck in the window. Janky see, janky do. Photo taken. **Update, blind replaced on evening of 8/16.**
When we originally got to the floor, Maci was hot, I was about to sweat to death and the nurse says the thermostats don’t go lower than 72°. Well ma’am, they do on the respiratory, neuro and intermediate ICU floors. She made a call to maintenance right then and then advised me someone would come later, they couldn’t come now. Well go figure, it 5am!
There were some linens in the room for me (a plus and appreciated) but no gown for Maci.
While discussing Maci’s history and transplant, with the nurse, she asked me if I knew which kidney Maci got, the right or the left? Let me just say I was dumbfounded.
Upon seeing her lab results from the ED, her kidney labs were awful, in my opinion. They planned to do another kidney ultrasound the afternoon of 8/8 but yet again, the ball was dropped. The nurse called them on speakerphone, they had it down as an ultrasound at bedside but were going to confirm and call the nurse back……no call back. She got the US on 8/9.
Has it become a foreign concept to check the lower extremities for a patient’s ID band if it is not on their arm? 8/8 Lab woke me to ask where her arm band was.
I was told within less than 48 hours of being here this stay that nothing could be done regarding any test for her airway (DISE) because she would have to be put to sleep and they can't do that if she has an infection. I understood that and told all of the docs that we will address this main concern right now which is the UTI and resolve the infection and I wanted repeat labs and if her WBC count was normal we would get the DISE DURING this hospital stay because I would NOT take her home again without it so the only way to not have it done is if we experience the second coming. I DID NOT FEEL SAFE TAKING HER HOME! I couldn’t understand why that was so difficult to understand. Had this second incident happened earlier during the day and I had not put her pulse ox on in preparation for bedtime, it could have been 30 minutes or more before I went into her room to give her “go to sleep” meds. If that were the case, what would her O2 sat been then, if it was 66% approximately a minute after the machined alarmed and I went into her room? I have a monitor and a camera and she looked fine on those, even after her Pulse Ox monitor went off.
On 8/12 a senior resident with ENT came by and he was great; he listened to me. I basically told him that when I am concerned about my daughter’s breathing and keep getting told, “we can’t do anything while she has a UTI”, “the hospital is short on anesthesiologist and there is a long wait for the OR”, “there are 5 children needing procedures ahead of her” so we will discuss things at her clinic appointment on 8/22….all I am hearing is that my daughter is not important and her having respiratory distress and her O2 sat dropping to the 60s is just not a priority for them. She is now on the schedule for an airway evaluation for Monday, 8/19. Now the hope is that 1) she stays on the schedule and isn’t bumped or canceled 2) I don’t get a gigantic bill from her insurance because they didn’t see that staying in patient was justified as we await the study since her UTI has been resolved.
At some point, soon after starting abx (first full day or the second, 8/8/ or 8/9) the IV kept beeping. And beeping. For ONE HOUR and FOURTY FIVE MINUTES. All of the errors were “occluded patient side” except twice was “air in line”. I was in text messages with my family at the time and sent a photo to which one of my sisters, who is a nurse circled an area on the photo and said she wasn’t sure if it was the blanket reflection or if she was seeing bubbles in the line. I got up and looked and yep, three separate areas of the tubing, I found bubbles. I know that there is a certain amount of air that can be in an IV line and it won’t be harmful. I believe it is 1 mL/kg of the patient’s weight. HOWEVER, I do not want any risks taken with my child and I am not trying to order her up an air embolism! Photo taken.
I pointed the areas in the IV line out to the nurse and she was too busy focusing on repositioning Maci’s arm for the 400th time, but at least this time she brought an arm board. (Which thankfully worked but……more on that below.) I made sure to say again to the nurse, there are bubbles in three different areas of the line and it’s too many for my liking so can you please re-prime the line and she did.
At 10:15 am they did an in and out cath for a UA and UC. The nurse changed her diaper then but never even checked it again until 6pm.
I noticed the next day, 8/9, that she must have wet the bed in addition to the pad the day prior because when I was changing a dirty diaper and had to change out the pad, there was a dry area on the actual sheet where urine had dried as well as a wet spot from that recent bowel movement which I was changing her for. The day before, the nurse just put down a new pad over the dirty sheet. I am guessing because it was almost shift change and she couldn’t be bothered with all that extra work of changing a sheet so close to leaving. Photo taken.
8/9 was told by who I later learned was a med student (last name something like Beshra, Beshera….she was on Team D I believe and wears a hijab) that we should be getting the results from the respiratory panel and the swab had not been done! She wanted to argue with me that she had looked in the computer and the results were pending. I told her that I don’t know how results could be pending when the test itself was pending.
8/9 I had another issue with the same med student regarding a prednisone increase. I had notified our Neph team in AL and sent them lab results. They wanted to increase (double) her prednisone ONLY while being treated for her UTI. They even specifically told me she was currently on 0.1 mg/kg/day which equaled 3mg dosed daily and they would increase to 0.2 mg/kg/day equaling 6mg daily. I asked that they communicate that to Nephrology here and that I had the number to Neph in AL if they wanted to go ahead and take it to pass along. Little Miss Med Student instead of just simply saying she would pass the info along and get back with me on what they said wanted to argue that it would be up to them whether they wanted to contact AL or not and if they felt it was necessary to increase the prednisone. I told her we had never had a problem with Neph here contacting and collaborating with Neph in AL before and I was just trying to save some time. She again more or less repeated what she had said previously and it was clear she needed to have the last word in any conversation.
8/10 with 8am meds, the prednisone was still Maci’s REGULAR dose. When Little Miss Medical Student came by, I told her Maci had not received the increased dose of Prednisone and asked if Nephrology here had been informed that AL had suggested an increase. I was merely asking for a status update and to be sure at least the information had been passed along. Med student proceeded to tell me that they had just gotten the information from me yesterday afternoon and it was LATE in the afternoon ON A FRIDAY and so she was sure no one had had the time to talk to anyone yet and IF the doctor decided to call and increase the Prednisone it could be started in the morning (meaning 8/11). At this point she had pissed me off and I told her I was simply asking for an update but that there WOULD be an increase in her prednisone if I had to give it myself out of her home meds. Interrupting me she told me she would HIGHLY recommend that I NOT do that and I didn’t even let her finish. I told her that it was not her decision on whether there was an increase or not, it was her responsibility to communicate the request to Nephrology and then the decision back to me if Neph didn’t tell me first. I told her that if they DID agree to make the increase, that the remaining dose could be given later that day instead of waiting until the following morning. She wanted to go back to telling me not to give her the additional dose…and I cut her off again and told her if it came to that I would write down the amount and time given for the nurse to document what I had done and she could leave. Thankfully that was the last time I saw her but I did tell one of the other doctors to not send her back in this room and someone needed let her know she needed to change career paths to accounting or something involving minimal interaction with other people.
**Side Note** I want to point out that the Nephrologist on service during that time, also wore a hijab. My issue was NOT with the Nephrologist. They pronounced her last name and it sounded like Dr. “Aloti”. She is here filling in for two months and from Michigan. My problem was NEVER with her. She was fabulous. She actually moved Maci from the floor/Team’s care and put her under Nephrology as primary because she had been made aware of the communication issues.
People want to argue instead of simply saying “let me check”, “let me look into that”…..same med student told me they got a weight when she came to the floor and THEY DID NOT. I asked for an updated weight. If they had gotten a weight when we came to the floor, I would not have asked for one again. I AM NOT THE ONE MISSING THINGS HERE, YOU ARE! Turns out they had gotten it in the ED. I called my husband and asked and they had gotten it before I had parked and gotten into the room at the ED.
WHAT is going on with the computer system? Why do I have to go over meds multiple times and why does it show a weight was taken on the floor at 4:30 am but in REALITY, it was taken in the ED several hours prior. Why does it show that a respiratory panel was sent but the patient had not even been swabbed yet? Yes, I understand the difference in when something is ordered there is a time and when results are pending/returned.
I am tired of finding things in her bed like syringe caps or IV flush syringes or her poop stained arm board after it was changed and left. Photos taken.
The arm board was taped to reinforce stability but was taped too tight for when she bends her harm. It was taped while her arm was straight, and she bends her arm more often than keeping it straight. Photos taken. Updated photos taken after originals.
I am tired of having to continuously correct med administration – Maci’s iron is NOT via gtube and the sodium is NOT via gtube it goes into her formula / water.
I am tired of cleaning up stuff off the floor that has fallen out of the garbage can or never made it to the garbage can. I am not part of EVS but if you’d like to begin paying me an hourly wage, I will take it. Photos taken.
I am tired of correcting people that she is not on oxygen. 2nd night in, nurse said doctor said she was on 21%. THAT IS ROOM AIR !!! This was after I had inquired about her monitor continuously going on due to O2 sat at 89 and 88. Doc said it was ok because it was set to alarm if it dropped below 88 and she was on oxygen anyway. A) then WHY is the monior in the room alarming at 89 and 88 if you say it is set to alarm below 88. Where is THAT alarm going to go off at because it is obvious that alarming for an hour and 45 minutes here inside the room doesn’t notify anyone anywhere outside this room. B) I would think that because you THINK she is on oxygen and that she is dropping to 89 and 88 and that it would be LESS ok but that’s just me. What do I know, I am just a Mom; he’s the “doctor”.
With each stay there are more and more broken chairs, broken recliners, and couches that separate into pieces and have tears in the seat. While I am not expecting a sleep number bed to lounge and sleep in, something that is not broken or feels like concrete would be an upgrade from would be nice. Meanwhile, if I cannot get something remotely comfortable, don’t deny or snark at me over additional pillows after I ask for even more a third time. When you are 52 years old, are your child’s 24/7 caregiver with no breaks, no relief, EVER, you’ve had one hip replacement because of wearing it out after having to carry and transport your child for over 10 years, need a same side knee replacement but cannot get that done because there is no one who can pick up any slack in caring for your kid while you recuperate and because your spouse has to work two jobs to make ends meet and this “furniture” makes your pain worse and also ADDS back, neck and shoulder pain, THEN you can talk to me about a pillow allowance. I am almost to the point that I may need my own wound care specialist appointment to check for skin breakdown.
If a nurse comes into a room and finds the curtain drawn, leave it that way when you leave. Because maybe I don’t want people walking down the hall seeing my big butt hanging off the edge of this couch that was made for Karen Carpenter.
Why are things so inconsistent between floors?
· Shampoo caps readily available on some floors but others do not have them and nurses look at me like I have a third eye when I ask for one. Some have never seen them. Some do not know how to get them. Some simply request one from another floor and they are tubed up. Some make a request from “down stairs” and get one that way.
· Dish soap -one floor it was already in the room, another floor “we don’t have any on this floor” and another floor, told it’s kept in the family room only.
· Bed baths – some floors the nurses and PCA’s are almost bothersome trying to give a bed bath every single day. Other floors, stay 2 weeks and no one ever even offers one.
· PCA unavailable because they are having to sit with patients because there are not enough sitters. GET MORE SITTERS! The inability to utilize the PCAs are causing more work on the nurses and it’s no wonder they feel the burn out more quickly and lose empathy.
· Some floors get mopped daily, every other day and some not at all. 7 days in Intermediate ICU in May and not one time was the floor cleaned.
· Some floors change O2 sensor locations every 4 hours. Some once a day. Some not at all! If I had not changed out her sensor after it being taped on twice and I changed toes, it would still be on her original toe. One night nurse changed toes since I changed I changed it last.
If they are not changing locations and just reinforcing tape, they aren’t checking the skin for breakdown.
WHY? WHY? WHY? are these employees able to wear scrubs that are so tight there is nothing left to the imagination. A previous stay one nurse had on what looked like exercise leggings. I am not hip to all of the new scrub fashions, so I didn’t want to assume it was work out attire but sure looked like it. Photo taken.
8/10 @ 8:20am nurse was here to give meds but was going to hold tacro due to lab order to get FK506. Advised nurse to give the tacro and note that mom instructed otherwise would give home med because I DO NOT GIVE HER MEDS THIS LATE. At of 11:33 am, lab still had not been here and ended up being a no show. Why was lab a no show? No one could seem to give me an answer. This would have been the third day for a tacro level. The reason, per Nephrology, a previous level this stay, was 17. I cannot see that result in the portal and am curious why? Since they had done it a previous visit, I am thinking that they must have ordered a level it in the ED which would have been after she had her night dose of tacro at 8pm. The previous ED visit in July they did the same thing for tacro and lacosamide and I kept asking unless they were trying to determine toxicity, why were they testing for it because it would come back very high since she had already been given her PM dose of both meds.
9:13am call button to request charge nurse. Specifically said charge nurse, not nurse. Nurse came in at 9:40am. 10:20am still no charge nurse. Was the charge nurse even notified? Was just the nurse notified?
11:14am call button to request doc to AGAIN correct administration of iron and sodium. Unit sec said she would notify the nurse. Nurse called doctor while in the room and I can hear him myself on the phone which was NOT on speaker. He asked why she was getting sodium anyway?
12:38pm nurse in, never notified by 11:14am call light button.
I begin each shift with telling the nurses that the ONLY thing that will make my head spin around on my shoulders is for Maci’s anti-rejection meds to not be on time. I do not do 30 minutes before or 30 minutes after. I do on time at 8am and 8pm. One of the night nurses came rolling in after 8:15, scanned meds and started to get vitals. I explained how it was after I give her meds at home and already after 8:15pm and that I really wanted her to get her meds right then. The nurse replied that she likes to get vitals before administering any medications, start the BP and work on doing several things at once. I told her that one of those several things needed to be giving Maci her anti-rejection meds or I was going to get up and get it from her home meds and give it to her myself.
If Maci were on a medication affecting her HR or BP I can understand getting baseline vitals prior to dosing but SHE ISN’T!
8/12 A pulse ox study was ordered and I wasn’t aware. I requested that the nurse give Maci her sleep meds and she did. RT came in with the pulse ox machine for the study. Maci ended up being woke up and was up until 4:30 am leaving the results of the study inaccurate as well as the CBG results.
8/13 I was asleep when lab came in that morning and CBGs were taken. This was a waste of time since Maci had not slept the night before, went to sleep at 4:30 am and according to the nurse was awake when she and the night nurse came in for shift change. Lab put a band-aid put on her finger when they were done. Maci pulled it off while her finger was still bleeding because she had dried blood all over her hand when I woke up to speak with the Nephrology resident. At some time after 9am, she gagged and began choking. The nurse happened to be in here. Maci had the band-aid in her mouth and it had to be removed. The nurse saw the dried blood on her hand and left it. I cleaned it up later. Photo taken.
They were initially going to repeat the study but changed their mind since one would be needed after any potential procedure that might take place in addition to the DISE. The order for the study was still in the computer on 8/13 and 8/14. I simply told the RTs to document that “Mom said no because it was supposed to be canceled.”. **Update as of the evening of 8/15 the order was still in for the study.**
When Maci was here in May she had to be moved from the 11th floor to Intermediate ICU where she had to go on CPAP, possibly BiPAP. While trialing CPAP, the nurse heard the monitor beeping and said that Maci had stopped breathing. She said she stopped timing at 2 minutes, aroused her and she began breathing. She called RT who came in and Maci temporarily stopped breathing again. RT contacted the doctor who came from the PICU, Dr. Ryan. They told him what happened and the RT suggested BiPAP. Dr. Ryan said not once but twice that he thought she was just breathing shallow and that they just weren’t seeing her chest rise. The second time, the RT spoke up and told him she placed her hand on Maci’s chest and it was not rising and falling. Then Dr. Ryan says ok we can switch to BiPap.
Also, while we were there, Dr. Shah? decided to discontinue Maci’s sodium chloride. SHE TAKES THIS DAILY. SHE HAS HYPONATREMIA. No one bothered to ask me that or tell me they were discontinuing it. I just happened to ask the nurse where her sodium chloride was and was told it was d/c’d. It resulted in Maci’s sodium dropping to 124 on 5/22. The doctor came into our room 3 times to apologize because he thought she was getting it because she had low sodium on admission. I told him that I did appreciate him apologizing and while I have always disliked following a thank you with a “but”, had he just asked me about it or had someone ask me about it or let me know ahead of time the plan to d/c the sodium I could have prevented the mess. Her sodium was low on admit because she had been brought into the ED and due to the wait, she had not been given her evening nutrition which has salt nor had the dose of extra salt added to it. We had to stay in the hospital an extra night/day because of this. The first time a doctor steps into a patient’s room he is responsible for should not be to apologize.
One day (date unknonwn), one of the sweet RT's we have had before came running into the room and asked if everything was ok? She went to Maci’s bed and looked at her who was lying there, doing just fine. Maci was due for her oscillator thingie at 2pm and it was 1pm’ish. I know RT is shorthanded so I asked the nurse to call and let them know Maci was about to fall asleep and that she would skip her 2pm shakey shakey vest but that she had taken pulled apart her nasal cannula and tubing on her Airvo machine so we would need a new one of each if she had the chance to bring a replacement before end of shift. The RT said the nurse called and told her that the Mom (me) needed her ASAP! The RT said that she was confused at first but thought how I am not the ASAP type and thought maybe something was wrong so she RAN up to our room. Only to find out that the nurse was supposed to call to PREVENT her from wasting a trip to us. The communication is LACKING around here to put it mildly.
The beeping monitors!!! It took until 8/13 for someone to adjust the settings on the monitor for O2 and HR. Maci’s HR when she is in a deep sleep will drop into the 60’s. She was supposed to alarm at an O2 sat below 88 but alarmed at 89 and 88. The monitor was set to alarm below 70. She was supposed to alarm at an O2 sat below 88 but alarmed at 89 and 88. For 4 nights the monitor beeped constantly, ALL NIGHT LONG for one or the other. I plan on removing my microwave and anything else from my home that beeps, all thanks to Le Bonheur and the inability for SOMEONE to correct this problem, thus giving me post traumatic beeping disorder!
The floors have been mopped once since 8/8 and that was on 8/9. One other time, someone asked if I would like them to mop the floors or was it not needed. There was a resident in at the time and so I just shook my head no. No one has bothered since. Meanwhile things continue to be dropped on the floor and not picked up and by the pole holding the feeding pump it looks like something was dripped or spilled in the floor and on the pole as well. Photos taken. **Update 8/15 10:40, EVS came in, emptied trash and mopped the floor – without my having to ask.** **Update #2, emptied trash and mopped floor on 8/16**
8/14 the nurse comes in and says she is “here to get vitals and see if she needs to be changed.” She got vitals but didn’t check Maci’s diaper.
Maci is going to poop. She’s on antibiotics. That means diarrhea is even a possibility. Please don’t come in to change her and find her in a “puddle of mud” and act like you have NEVER seen such a thing and keep repeating over and over, “girl you made a mess”, “woo, you got it everywhere”, “we may need a third person in here for this”. Go get yourself a hazmat suit and goggles if it makes you feel better and do your job! If you feel diaper changes are for the PCA’s then speak up about not having one. If you want the parents to change the diapers, speak up for better sleeping and seating accommodations so they don’t feel like they’ve been run over by a freight train. Leave your peanut gallery comments unsaid and maybe a parent will be more inclined to help out with the diapers.
I spent some time on 8/12 talking with Amy Carter and Dr. Carlos Torres. During our chat, I had expressed that I was so extremely frustrated and disappointed in Le Bonheur that I had began documenting everything and I meant everything, down to the dust currently hanging from the ceiling. Photos taken.
Dr. Torres did most of the talking and at the end of our conversation had a clear understanding of my concerns and frustrations. I commend him on his active listening and providing feedback.
During the conversation, Amy maintained a flat affect, with little to no change in body language. As they were leaving, the only thing she said during the entire meeting was to ask me if I wanted EVS to come in and get the dust off the ceiling or did I want it left alone. I told her to leave it be for now as I did not want any to become lose and begin floating around in the air, but I would highly suggest it be gone before the next patient comes into this room and that I was not entirely sure that I would not be emailing the Joint Commission. How is she the patient advocate???? HOW? That woman does NOT need to be in the position she is. Do this place a huge favor and get someone in that position who doesn’t just sit with her little notebook taking a few notes, not interjecting anything and keeps the disposition of rather being somewhere else.
If I ask for someone’s email or a way to contact them, stop telling me there are people or departments who handle certain things when I ask for contact information for risk management or the CEO. Don’t tell me the CEO doesn’t take complaints. Don’t tell me I need to talk to Flat Affect Advocate Amy. I am asking for business contact information not their cellphone number!!
If a CEO of the entire Methodist Healthcare System doesn’t want to hear or know of unresolved issues, obviously he is A) oblivious to what’s going on or B) he doesn’t care. Correct me if I am wrong here but shouldn’t the one highest on the totem pole want to know what’s going on from the ground up if there are concerns? If not, maybe his 7 or whatever years as CEO has made him too comfortable and you need to move the hell on and perhaps OUT of healthcare.
I was about to come for an unanswered email sent to the person who leaves an outgoing message when you call the Office of the President. I double checked my email and forgot the dot between the first and last name so that was my fault. See…..I will admit when I am wrong or make a mistake.
8/14, 12:16pm the email was resent correctly. The outgoing message says for a “prompt” response sending an email is best. I received a reply of acknowledgement on 8/15 at 9:04. I do consider that prompt, so I give her credit for that.
I consider myself sensible and somewhat educated and I will advocate for Maci with every ounce of my being which is why I will continue to be a squeaky wheel. However, this isn’t entirely about my daughter and the disappointing experiences. It is also about the children who have parents that may not know better and think that the care they are receiving is first-rate and acceptable. It is heartbreaking to think of how many have potentially been overlooked.
1. Why are specialists leaving but no new ones are anxiously seeking employment here?
2. Why are there specialists here filling in for a couple-few months to help out?
3. Why are there no anesthesiologists and of the ones that are here, more of them are travel contracts than actual Le Bonheur employees?
4. Why is there a shortage with Respiratory Therapists and you have one RT sometimes covering ALL the floors and some RTs staying over from days to help night shift?
5. Why did I have to wait from February to June for my daughter’s sleep study because the sleep lab is short employees?
6. Why are there nurses taking on extra shifts or working partial shifts because there are days/nights when there are not enough nurses?
7. Why do you have CNA’s having to be sitters because there are not enough sitters?
8. Why do you have new grad nurses being overseen and trained by other new grad nurses who graduated less than a year ago? Where are your seasoned nurses? There are a few things that I have taught the newbies that no one showed them. i.e. the delay start on the feeding pump, how to use a syringe to quickly dissolve a med if you cannot locate a pill crusher or in this case, no plastic bags with the crusher. WORK SMART and improve your time management where you can.
The only thing that seems consistent around here is the oatmeal and even sometimes it isn’t.
In closing, I do not feel safe leaving my child. If I were a working mom, outside of the home and had to leave her during the day, I am not confident that she would get quality care. I am not confident that she would get anything above minimal care.
Left out of original and additional issues –
May stay – one of the rooms either on the 11th floor or in IMICU, while taking a shower I noticed water dripping from the light in the shower. Notified the nurse – never saw anyone.
June stay – I had to wash my clothes in the tub and let them air dry. The washer on the neuro floor is broken but the dryer supposedly worked. No….after 3 hours my clothes were still wet and this was after I had hung them to dry overnight so they were not dripping wet because I knew it would take forever for them to dry that way.
Current stay –
Shower curtain is dirty at the bottom. It is not stained because I cleaned a small section myself to be sure.
The fan does not work so all that humidity during and after a shower just sits in the bathroom. It keeps the floor wet as well. I have to scoot my feet around on a towel to dry the floor.
When EVS has come in to empty the trash and asked if they can get me anything, twice I have asked for towels and both times never received them. It is quite a surprise to go take a shower and your towel that you left hanging to dry is gone and you don’t have any to dry off with or to step out onto. To try not to slip on the floor as you go over to get paper towels to put on the floor and to dry off on is complete fun. Thankfully, I had my luggage in the bathroom so I was able to use a tshirt to dry off with.
The tubs are slick. I have nearly fallen multiple times. Thankful for the grab rails.
BE QUIET! No one cares that you are going to grab yourself a straw at midnight!
WHY would you block off parking in the main lot with cones when an event is going on? Not everyone
You will get a ticket for parking outside a spot yet you can smell the marijuana being smoked outside by people sitting in their cars.
Sheets, holes, tape melted, this stay one sheet had an EKG sticker melted to it.
Sodium is added to milk and water. Don’t overfill the amount and add the sodium. If you end up with excess milk, how much of the sodium did she get, how much is left in the bag?
I had to remember and tell the docs that Maci is on ½ baby aspirin so we could d/c it before her procedure.
8/10 Maci had a bowel movement. Nurse in and starting to change it at 9:00am. Takes top sheet off of Maci. New linens in the room at 9:10 am, 9:13 call light to check to see where nurse was. Nurse back at 9:40, 9:48 nurse changing Maci and walks away from bedside with rail down and Maci uncovered. Photo taken at 10:15 am after all changed with exception to arm board that had poop on it.
8/16 PM Maci had a bowel movement in the AM. That evening, the nurse changed her sheet because again, a new bed pad had been placed over the poopy sheet instead of being changed. She also had dried poop on her gown.
8/16 PM Maci had a seizure, her breathing was questionable and they called the medical response team. Just after they had left, the charge nurse came in and questioned the nurse about a medication. She had entered the room on the back end of a conversation and was arguing with the nurse and was not listening to what he was trying to tell her. It was over Maci’s daily dose of seizure med vs another med given IV. I not so calmly told them to stop, just stop arguing and asked the nurse to give Maci her 3 evening medications, through her g-tube, right now, please. Overstimulation is a trigger for Maci’s seizures which I feel was the cause of the one she had just had, and I didn’t want her to have another. The charge nurse walked out of the room, the nurse gave the medications, was back at his computer and here the charge nurse comes back to continue the SAME discussion/argument with the nurse but this time in a whisper. I could hear enough to know it was about the same thing and yelled for her to get out, get out of this room and do not come back. They told me she was the charge nurse and I told them that I did not care, she needed to get out and not come back because I had told them to stop arguing once, MRT had just left this room, and I was already stressed out she was making it worse and to get out. And I yelled it.
8/18 – ENT came by to check on Maci and to see if I had any questions. My one question – what time is her procedure with a possible surgical procedure tomorrow? He had no idea.
8/18 at least the second time formula has been short. Today it was 49mL short. The formula room makes the exact amount needed. There is no account for the amount for priming the line or differences in measurements between the items used to measure. I know that if I pull up 10mL of liquid in a Baxter syringe at home and put it in a clear plastic medicine cup that comes with Tylenol, it is not the same amount.
8/18 PM I am still trying to find out a time for surgery. Someone mentioned that you can sometimes see the time in Cerner and described where to look. The Nurse said she’d ask her charge nurse who happened to walk in a few minutes later. When I asked her, she only said I’ve been a handful of years and we’ve never seen the OR schedule.
I said it’s not the OR schedule it’s HER time to go for a procedure. She just repeated what she said previously and never bothered to look.
I called the house supervisor.
I told her I was looking for the time because I needed to know if my husband who was working that night an hour away needed to leave work early. I was not asking to hold their feet to the fire on the exact time.
She did not listen!!!!! She kept saying whatever time she may be on the schedule doesn’t mean that’s the exact time.
I told her let me repeat what I have already said and maybe she would remember the phrase I used. It was NOT to hold anyone’s feet to the fire on the exact time. My husband is at work an hour away . If she is scheduled at 8am he will need to leave work early. I told her I’m not an idiot like the employees around here. I know if she’s at 10 cases before can run longer. I need to know SOLELY to tell my husband to know whether to leave work early or not. And by this time I was crying and raising my voice.
Told me at first she only sees the outpatient surgery schedule.
Then said no one to call.
I said you don’t have people working down there in case of an emergency?
And she said is your daughter having an emergency surgery?
I said NO TAMARA LISTEN CLOSELY…..and asked again if there was not SOMEONE there during the night she can call to ask about the schedule who is there on staff in case there’s an emergency.
And she already set herself up for that call said they work with a small crew so she will call and see if she can get someone who might have access to the schedule.
I heard there’s probably not a schedule yet……
The resident told me there was one he said he just didn’t have it with him and then looked at something on his phone and said he couldn’t get it.
Everyone’s like oh well I semi-lifted a pinky…..
8/19 AM husband arrived at 7:15 and asked why Maci’s arm and the bed were wet. Maci’s IV had leaked and soaked the sheet. She had just started IV fluids at midnight. If IVs with fluids running are to be checked once an hour, how did that fluid leak and it went unnoticed? The sheet was wet down to her waist. Photo taken.
8/20 PM woke up to monitor alarming red d/t O2 at 1AM it took 10 minutes for anyone to come in.
Did you push the call button?
Sounds like she needs to be suctioned and then they all end up leaving the room but RT was not here yet! 🤷RT came and did chest PT but no suction.
No suction to my knowledge until after shift change and day nurse suctioned.
More misc.
· Thermometer on wall not working since we were admitted but there was an extra lying on top of sharps - wall one only needed batteries!!!! PCC changed the batteries 8/19.
· Lights are out / bulbs blown.
· Feed error on feeding pump because the tube gets kinked because the door is missing!
· Feed error on feeding pump because the tube gets kinked because the door is missing!
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